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Paula’s Story With Thyroid Eye Disease

Paula had a long journey with thyroid eye disease. Now she is using her experience to help at TEDct and support others whose lives are affected by the disease.

My name is Paula and I live in North Weald in Epping Essex. I am 45 years old, married with a daughter

Having suffered with Graves’ disease and thyroid eye disease myself I felt I could support fellow sufferers as I really understood what people were going through. It is a lonely disease that is both mentally and physically damaging.

It took a long time before I was diagnosed with Graves’ disease; my eyes were protruding, the right eye being worse; I was blacking out in hot rooms and felt generally unwell. After three years I had 95% of my thyroid removed followed by orbital decompression on both eyes 4 years later, thanks to Moorfields Eye Hospital.

Source: https://tedct.org.uk/understanding-ted/patient-stories/paula/

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