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welcome_mail_status---------1 oneXLHvoice

Hi JR100!

Wondering why it can be so difficult to arrive at an accurate XLH diagnosis? The Diagnosis Educator answers your questions about the process of getting and giving an XLH diagnosis.

Find information on the signs and symptoms associated with XLH, tools and guides used to determine if someone has XLH, and post-diagnosis support. No matter what your role is in the XLH community or how new you are to it, there are resources here for you.

An early XLH diagnosis is critical. Through diagnosis education and awareness, we can speed up the time to diagnosis so please share this resource with your network (and in the Social Wall)!

the oneXLHvoice team

rareLife solutions 53 Water Street,
2nd floor, South Norwalk, CT 06854
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