Rare Disease Legislative Advocates - Facebook | oneGRAVESvoice

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Rare Disease Legislative Advocates – Facebook


Rare Disease Legislative Advocates (RDLA) is a program of the EveryLife Foundation for Rare Diseases and is designed to help patients make their voices heard to change public policy. RDLA works to empower an individual to become an advocate by providing informational meetings, legislative resources, advocacy tools, and special events that support organizations and advocates working to promote rare disease legislation.

RDLA’s goal is to bring the rare disease community together, grow the patient advocacy community and work collectively to ensure that the many voices of patients with rare diseases have an opportunity to be heard on Capitol Hill and in state government.