Annual Rare Disease Scientific Workshop - Virtual | oneGRAVESvoice

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Annual Rare Disease Scientific Workshop – Virtual


The EveryLife Foundation for Rare Diseases will convene its 12th annual Scientific Workshop to highlight and document the COVID-19 mitigation strategies being utilized by industry partners and rare disease communities in an effort to move towards permanent solutions.

The goal of this year’s workshop is to gather key thought-leaders from the FDA, NIH, CMS, industry, patient organizations and other relevant stakeholder groups to highlight case studies of COVID-19 innovations, discuss potential longer-term models and best practices, and to identify how together, we can carve the pathway forward. 

When:
Tuesday, December 15, 2020
10:00 AM – 3:15 PM

Annual Rare Disease Scientific Workshop – Virtual
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