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Trusted Resources: News & Meetings
Latest announcements and gatherings
Data DIY – Becoming a Data-Centric Community
A strong data collection program can help you achieve all of your organization’s goals – beyond treatment development. Join us at the Houston Marriott Medical Center/Museum District, Monday, February 3rd through Wednesday, February 5th, 2020, to explore what more you can do with data and how data can be a community unifier.
In this workshop, you’ll learn how rare disease advocacy leaders harness the power of data to:
• Fine-tune your research strategy and attract investors
• Leverage data to support early diagnosis and better clinical care
• Manage multi-stakeholder collaborations
When:
February 3-5, 2020
Where:
Houston Marriott Medical Center
6580 Fannin Street
Houston, Texas, United States
The event has ended.
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