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RARE on the Road is a rare disease leadership series hosted by Global Genes and the EveryLife Foundation for Rare Diseases. These events provide critical education and insight to the rare disease community. This traveling leadership and educational series help equip attendees with the knowledge on advocating for yourself, in your local and rare disease community, as well as how to advocate on a legislative level. The events aim to activate the rare disease community at a local level and empower patients and caregivers with knowledge and insight to better serve their rare community.
July 13, 2019
8:30 AM-4:30 PM
The Dakota Room
Sanford Research Center
2301 East 60th Street North
Sioux Falls, South Dakota, United States
The event has ended.
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