Trusted Resources: People & Places
Healthcare providers, researchers, and advocates
National Organization for Rare Disorders55 Kenosia Avenue
Danbury, Connecticut, United States
National Organization for Rare Disorders (NORD) is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than 280 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.
NORD’s team of medical writers work closely with medical professionals and disease-specific organizations to provide accurate and detailed disease information. By raising awareness of rare diseases among physicians and other medical professionals, NORD strives to help patients obtain earlier diagnosis and appropriate treatment.
The Graves’ Disease & Thyroid Foundation (GDTF) of NORD is a national, voluntary, non-profit organization dedicated to providing resources, referrals, and current medical information to people with Graves’ disease. Established in 1990, the Graves’ Disease & Thyroid Foundation offers a one-on-one individual support network and assists in the development of locally based support groups. It establishes liaison relationships with major hospitals and research institutions, both nationally and internationally. The Foundation’s Medical and Advisory Board consists of representatives from a variety of disciplines who play essential roles in the treatment and support of individuals with Graves’ disease (e.g., endocrinology, surgery, ophthalmology, pharmacology, internal medicine, and family practice).
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